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Our Journey with Tracheostomy Sur iTunes

Frustrated by the lack of easy to understand information about Emily’s illness, her parents founded The Emily Center so that families of sick children would always have access to pediatric health information that is accurate, easy to understand, and free of charge to Arizona’s families.  The Emily Center at Phoenix Children’s Hospital presents Our JourneyTM with Tracheostomy as a tool to help families of children with a tracheostomy identify what they need to know before taking their child home from the hospital.  — Help families feel confident that they can safely care for their child at home after discharge from the hospital, know the signs of possible problems, and know how to respond.  Sometimes health care providers think they are clearly communicating, but don’t check to make sure you understand their instructions.  — Be used from the time of admission throughout hospitalization, to facilitate conversations between families and the health care team.  This gives the health care provider an opportunity to confirm information and skills and correct misunderstandings.  When a child is in the hospital, parents can be overwhelmed by nurses and doctors rushing around, speaking medical jargon.  If you are able to teach back the information in your own words, you can be confident you do understand.  Emily fought a rare form of leukemia for four years before losing her battle a few days before her seventh birthday.  — Give parents a safe way to admit what they don’t know or understand, and ask questions.  — Cue families on what they need to teach back to or demonstrate for their nurse or doctor.  — Help parents identify what they need to know before going home.  Founded in 1990, the Center is named after Emily Anderson.  The Our JourneyTM with Tracheostomy mobile app has been funded by a grant from Cox.  Parts of this app may also be applied to a clinic or emergency room visit.